Nadine Kasparian

Associate Professor

Nadine Kasparian is Associate Professor in Medical Psychology at UNSW. She is also Head of Psychology at the Heart Centre for Children, where in 2010, under the auspices of The Sydney Children's Hospitals Network and UNSW Sydney, A/Prof Kasparian established Australasia's first integrated psychology research program and clinical service dedicated to childhood heart disease.

Current roles include:

  • National Heart Foundation Future Leader Fellow (2017-2020)
  • Co-Founder, Cardiac Society of Australia and New Zealand (CSANZ) Psychology and Supportive Care Working Group (2016-)
  • Research Lead (Quality of Life), Australia and New Zealand Fontan Registry (2015-)
  • Research Lead (Psychology), Australia and New Zealand Congenital Heart Disease Registry (2016-)
  • Chair, Psychosocial Round in Cardiac Care, Heart Centre for Children, The Sydney Children’s Hospitals Network (2010-)

Since 2007, A/Prof Kasparian has published, or had accepted for publication, over 100 journal articles, abstracts and book chapters, and 10 evidence-based interventions.

In 2015 Nadine developed the Perinatal Psychology course in the UNSW Master of Women's Health degree. This was the first time a course of this kind had been offered at UNSW. She also regularly lectures and provides workshops for a range of organisations, including NSW Institute of Psychiatry, and numerous overseas-based groups.

 

Society Memberships & Professional Activities:

  • Co-Founder, Cardiac Society of Australia and New Zealand (CSANZ) Psychology and Supportive Care Working Group (2016-)
  • Research Lead (Quality of Life), Australia and New Zealand Fontan Registry (2015-)
  • Research Lead (Psychology), Australia and New Zealand Congenital Heart Disease Registry (2016-)
  • Co-Leader, Behavioural Science Research Program, International Melanoma Genetics Consortium (GenoMEL)
  • Secretary, International Psycho-Oncology Society (IPOS) Fear of Cancer Recurrence Group
  • Chair, Psychosocial Round in Cardiac Care, Heart Centre for Children, The Sydney Children’s Hospitals Network (2010-)
  • Executive Committee, National Psycho-Oncology Clinical Trials Group (PoCoG)
  • Executive Committee, Australian Psychological Society Perinatal and Infant Psychology Interest Group
  • Scientific Advisory Committee, Sydney Children's Hospitals Network Ethics Committee
  • Member, Australian Psychological Society (APS)
  • Member, World Association for Infant Mental Health
  • Member, International Society of Community Genetics and Genomics
 

Publications

Journal articles
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Wan HWY; Carey KA; D'Silva A; Vucic S; Kiernan MC; Kasparian NA; Farrar MA, 2020, 'Health, wellbeing and lived experiences of adults with SMA: a scoping systematic review.', Orphanet J Rare Dis, vol. 15, pp. 70, http://dx.doi.org/10.1186/s13023-020-1339-3
2020
Zentner D; Celermajer DS; Gentles T; d'Udekem Y; Ayer J; Blue GM; Bridgman C; Burchill L; Cheung M; Cordina R; Culnane E; Davis A; du Plessis K; Eagleson K; Finucane K; Frank B; Greenway S; Grigg L; Hardikar W; Hornung T; Hynson J; Iyengar AJ; James P; Justo R; Kalman J; Kasparian N; Le B; Marshall K; Mathew J; McGiffin D; McGuire M; Monagle P; Moore B; Neilsen J; O'Connor B; O'Donnell C; Pflaumer A; Rice K; Sholler G; Skinner JR; Sood S; Ward J; Weintraub R; Wilson T; Wilson W; Winlaw D; Wood A, 2020, 'Management of People With a Fontan Circulation: a Cardiac Society of Australia and New Zealand Position statement', Heart Lung and Circulation, vol. 29, pp. 5 - 39, http://dx.doi.org/10.1016/j.hlc.2019.09.010
2020
Strange G; Stewart S; Farthing M; Kasparian NA; Selbie L; O'Donnell C; Ayer J; Cordina R; Celermajer D, 2020, 'Living With, and Caring for, Congenital Heart Disease in Australia: Insights From the Congenital Heart Alliance of Australia and New Zealand Online Survey', Heart Lung and Circulation, vol. 29, pp. 216 - 223, http://dx.doi.org/10.1016/j.hlc.2018.12.009
2020
O'Donovan C; Ingles J; Broadbent E; Skinner JR; Kasparian NA, 2020, 'How Patient Perceptions Shape Responses and Outcomes in Inherited Cardiac Conditions', Heart Lung and Circulation, vol. 29, pp. 641 - 652, http://dx.doi.org/10.1016/j.hlc.2019.11.003
2020
Marshall KH; D'Udekem Y; Sholler GF; Opotowsky AR; Costa DSJ; Sharpe L; Celermajer DS; Winlaw DS; Newburger JW; Kasparian NA, 2020, 'Health-Related Quality of Life in Children, Adolescents, and Adults With a Fontan Circulation: A Meta-Analysis.', J Am Heart Assoc, vol. 9, pp. e014172, http://dx.doi.org/10.1161/JAHA.119.014172
2020
Paguinto SG; Kasparian NA; Bray P; Farrar M, 2019, '“It’s not just the wheelchair, it’s everything else”: Australian parents’ perspectives of wheelchair prescription for children with neuromuscular disorders', Disability and Rehabilitation, pp. 1 - 10, http://dx.doi.org/10.1080/09638288.2019.1595749
2019
Dieng M; Morton RL; Costa DSJ; Butow PN; Menzies SW; Lo S; Mann GJ; Cust AE; Kasparian NA, 2019, 'Benefits of a brief psychological intervention targeting fear of cancer recurrence in people at high risk of developing another melanoma: 12-month follow-up results of a randomized controlled trial', BRITISH JOURNAL OF DERMATOLOGY, http://dx.doi.org/10.1111/bjd.17990
2019
Wan HWY; Carey KA; D'Silva A; Kasparian NA; Farrar MA, 2019, '"Getting ready for the adult world": How adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being', Orphanet Journal of Rare Diseases, vol. 14, http://dx.doi.org/10.1186/s13023-019-1052-2
2019
Paguinto SG; Kasparian NA; Bray P; Farrar M, 2019, 'Parents’ perceptions of power wheelchair prescription for children with a neuromuscular disorder: a scoping review', Disability and Rehabilitation, vol. 41, pp. 2750 - 2757, http://dx.doi.org/10.1080/09638288.2018.1474496
2019
McKay I; Coffey M; Doumit M; Bramley L; Sharp M; Kasparian N; Chuang S; Stelzer-Braid S; Waters S; Thomas T; Jaffe A; Katz T; Ooi C, 2019, 'IDENTIFYING CORRELATIONS BETWEEN DIETARY INTAKES AND MICROBIOTA IN CYSTIC FIBROSIS', in RESPIROLOGY, WILEY, Vol. 24, pp. 70 - 70, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000461458900129&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2019
Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'School students with chronic illness have unmet academic, social, and emotional school needs', School Psychology, vol. 34, pp. 627 - 636, http://dx.doi.org/10.1037/spq0000311
2019
Kan JM; Cowan CSM; Ooi CY; Kasparian NA, 2019, 'What can the gut microbiome teach us about the connections between child physical and mental health? A systematic review', Developmental Psychobiology, http://dx.doi.org/10.1002/dev.21819
2019
Lum A; Wakefield CE; Donnan B; Burns MA; Fardell JE; Jaffe A; Kasparian NA; Kennedy SE; Leach ST; Lemberg DA; Marshall GM, 2019, 'Facilitating engagement with school in students with chronic illness through positive education: A mixed-methods comparison study', School Psychology, vol. 34, pp. 677 - 686, http://dx.doi.org/10.1037/spq0000315
2019
Marokakis S; Kasparian NA; Kennedy SE, 2019, 'Re: Caring for infants with posterior urethral valves: A qualitative study of parents' experiences', Journal of Urology, vol. 201, pp. 429, http://dx.doi.org/10.1097/01.JU.0000553675.33041.9a
2019
Battistuzzi L; Franiuk M; Kasparian N; Rania N; Migliorini L; Varesco L, 2019, 'A qualitative study on decision-making about BRCA1/2 testing in Italian women', European Journal of Cancer Care, vol. 28, pp. e13083, http://dx.doi.org/10.1111/ecc.13083
2019
McGill BC; Wakefield CE; Vetsch J; Barlow-Stewart K; Kasparian NA; Patenaude AF; Young MA; Cohn RJ; Tucker KM, 2019, 'Children and young people's understanding of inherited conditions and their attitudes towards genetic testing: A systematic review', Clinical Genetics, vol. 95, pp. 10 - 22, http://dx.doi.org/10.1111/cge.13253
2019
Kasparian NA; Kan JM; Sood E; Wray J; Pincus HA; Newburger JW, 2019, 'Mental health care for parents of babies with congenital heart disease during intensive care unit admission: Systematic review and statement of best practice', Early Human Development, vol. 139, http://dx.doi.org/10.1016/j.earlhumdev.2019.104837
2019
Verrall CE; Blue GM; Loughran-Fowlds A; Kasparian N; Gecz J; Walker K; Dunwoodie SL; Cordina R; Sholler G; Badawi N; Winlaw D, 2019, ''Big issues' in neurodevelopment for children and adults with congenital heart disease', Open Heart, vol. 6, http://dx.doi.org/10.1136/openhrt-2018-000998
2019
Tesson S; Butow PN; Sholler GF; Sharpe L; Kovacs AH; Kasparian NA, 2019, 'Psychological interventions for people affected by childhood-onset heart disease: A systematic review', Health Psychology, vol. 38, pp. 151 - 161, http://dx.doi.org/10.1037/hea0000704
2019
Dieng M; Khanna N; Kasparian NA; Costa DSJ; Butow PN; Menzies SW; Mann GJ; Cust AE; Morton RL, 2019, 'Cost-Effectiveness of a Psycho-Educational Intervention Targeting Fear of Cancer Recurrence in People Treated for Early-Stage Melanoma', Applied Health Economics and Health Policy, vol. 17, pp. 669 - 681, http://dx.doi.org/10.1007/s40258-019-00483-6
2019
Kasparian NA, 2019, 'Heart care before birth: A psychobiological perspective on fetal cardiac diagnosis', Progress in Pediatric Cardiology, vol. 54, http://dx.doi.org/10.1016/j.ppedcard.2019.101142
2019
Denniss DL; Sholler GF; Costa DSJ; Winlaw DS; Kasparian NA, 2019, 'Need for Routine Screening of Health-Related Quality of Life in Families of Young Children with Complex Congenital Heart Disease', Journal of Pediatrics, vol. 205, pp. 21 - 28.e2, http://dx.doi.org/10.1016/j.jpeds.2018.09.037
2019
Ayling L; Henry A; Tracy S; Donkin C; Kasparian NA; Welsh AW, 2019, 'How well do women understand and remember information in labour versus in late pregnancy? A pilot randomised study', Journal of Obstetrics and Gynaecology, vol. 39, pp. 913 - 921, http://dx.doi.org/10.1080/01443615.2019.1575341
2019
Kasparian N; Dieng M; Morton R; Costa D; Butow P; Menzies S; Lo S; Mann G; Cust A, 2018, 'Long-term benefits of a brief, tailored psycho-educational intervention targeting fear of cancer recurrence in people at high risk of developing another melanoma: Results of a randomised controlled trial', in PSYCHO-ONCOLOGY, WILEY, pp. 11 - 11, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000022&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2018
Chong LSH; Fitzgerald DA; Craig JC; Manera KE; Hanson CS; Celermajer D; Ayer J; Kasparian NA; Tong A, 2018, 'Children’s experiences of congenital heart disease: a systematic review of qualitative studies', European Journal of Pediatrics, vol. 177, pp. 319 - 336, http://dx.doi.org/10.1007/s00431-017-3081-y
2018
Farrar MA; Carey KA; Paguinto SG; Chambers G; Kasparian NA, 2018, 'Financial, opportunity and psychosocial costs of spinal muscular atrophy: an exploratory qualitative analysis of Australian carer perspectives.', BMJ Opem, vol. 8, pp. e020907, http://dx.doi.org/10.1136/bmjopen-2017-020907
2018
Dieng M; Kasparian NA; Cust AE; Costa DSJ; Tran A; Butow PN; Menzies SW; Mann GJ; Morton RL, 2018, 'Sensitivity of preference-based quality-of-life measures for economic evaluations in early-stage Melanoma', JAMA Dermatology, vol. 154, pp. 52 - 59, http://dx.doi.org/10.1001/jamadermatol.2017.4701
2018
Kasparian NA; De Abreu Lourenco R; Winlaw DS; Sholler GF; Viney R; Kirk EPE, 2018, 'Tell me once, tell me soon: parents’ preferences for clinical genetics services for congenital heart disease', Genetics in Medicine, vol. 20, pp. 1387 - 1395, http://dx.doi.org/10.1038/gim.2018.16
2018
Marokakis S; Kasparian NA; Kennedy SE, 2017, 'Caring for infants with posterior urethral valves: A qualitative study of parents’ experiences', Journal of Child Health Care, vol. 21, pp. 424 - 434, http://dx.doi.org/10.1177/1367493517725833
2017
Dieng M; Kasparian NA; Mireskandari S; Butow P; Costa D; Morton R; Mann G; Menzies S; Cust A, 2017, 'Psychoeducational intervention for people at high risk of developing another melanoma: A pilot randomised controlled trial', BMJ Open, vol. 7, http://dx.doi.org/10.1136/bmjopen-2016-015195
2017
te West NID; Parkin K; Hayes W; Costa DSJ; Kasparian NA; Moore KH, 2017, 'Does motivation predict outcome of pelvic floor muscle retraining?', Neurourology and Urodynamics, vol. 36, pp. 316 - 321, http://dx.doi.org/10.1002/nau.22917
2017
Liang R; Meiser B; Smith S; Kasparian NA; Lewis CR; Chin M; Long GV; Ward R; Menzies AM; Harris-Wai JN; Kaur R, 2017, 'Advanced cancer patients’ attitudes towards, and experiences with, screening for somatic mutations in tumours: a qualitative study', European Journal of Cancer Care, vol. 26, http://dx.doi.org/10.1111/ecc.12600
2017
McKean EB; Kasparian NA; Batra S; Sholler GF; Winlaw DS; Dalby-Payne J, 2017, 'Feeding difficulties in neonates following cardiac surgery: Determinants of prolonged feeding-tube use', Cardiology in the Young, vol. 27, pp. 1203 - 1211, http://dx.doi.org/10.1017/S1047951116002845
2017
Marokakis S; Kasparian NA; Kennedy SE, 2017, 'Parents’ perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract: a qualitative study', BJU International, vol. 119, pp. 474 - 481, http://dx.doi.org/10.1111/bju.13668
2017
Kasparian NA; Lieu N; Winlaw DS; Cole A; Kirk E; Sholler GF, 2017, 'EHealth literacy and preferences for eHealth resources in parents of children with complex CHD', Cardiology in the Young, vol. 27, pp. 722 - 730, http://dx.doi.org/10.1017/S1047951116001177
2017
Kasparian NA; McElduff M; Dengler L; Smith J; Weir K; Kevin L; Turner C, 2016, 'FINDING A NEW RHYTHM: SPECIALISED MULTIDISCIPLINARY MODELS OF CARE TO IMPROVE PSYCHOLOGICAL ADJUSTMENT IN PARENTS OF CHILDREN WITH RARE INHERITED ARRHYTHMIA CONDITIONS', in INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE, SPRINGER, Vol. 23, pp. S166 - S166, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000388943400523&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2016
Celermajer D; Strange G; Cordina R; Selbie L; Sholler G; Winlaw D; Alphonso N; Justo R; Nicholae M; Kasparian N; Weintraub RG; Cheung M; Grigg LE; Brizard CP; Wheaton G; Disney P; Stewart S; Bullock A; Ramsay J; Gentles T; d'Udekem Y, 2016, 'Congenital Heart Disease Requires a Lifetime Continuum of Care: A Call for a Regional Registry', Heart Lung and Circulation, vol. 25, pp. 750 - 754, http://dx.doi.org/10.1016/j.hlc.2016.03.018
2016
Costa DSJ; Dieng M; Cust AE; Butow PN; Kasparian NA, 2016, 'Psychometric properties of the Fear of Cancer Recurrence Inventory: an item response theory approach', Psycho-Oncology, pp. 832 - 838, http://dx.doi.org/10.1002/pon.4018
2016
Marokakis S; Kasparian NA; Kennedy SE, 2016, 'Prenatal counselling for congenital anomalies: a systematic review', Prenatal Diagnosis, vol. 36, pp. 662 - 671, http://dx.doi.org/10.1002/pd.4836
2016
Caleshu C; Kasparian NA; Edwards KS; Yeates L; Semsarian C; Perez M; Ashley E; Turner CJ; Knowles JW; Ingles J, 2016, 'Interdisciplinary psychosocial care for families with inherited cardiovascular diseases', Trends in Cardiovascular Medicine, vol. 26, pp. 647 - 653, http://dx.doi.org/10.1016/j.tcm.2016.04.010
2016
Dieng M; Butow PN; Costa DSJ; Morton RL; Menzies SW; Mireskandari S; Tesson S; Mann GJ; Cust AE; Kasparian NA, 2016, 'Psychoeducational intervention to reduce fear of cancer recurrence in people at high risk of developing another primarymelanoma: results of a randomized controlled trial', Journal of Clinical Oncology, vol. 34, pp. 4405 - 4414, http://dx.doi.org/10.1200/JCO.2016.68.2278
2016
McDonald HM; Sherman KA; Petocz P; Kangas M; Grant KA; Kasparian NA, 2016, 'Mindfulness and the Experience of Psychological Distress: the Mediating Effects of Emotion Regulation and Attachment Anxiety', Mindfulness, vol. 7, pp. 799 - 808, http://dx.doi.org/10.1007/s12671-016-0517-9
2016
Kasparian NA; Winlaw DS; Sholler GF, 2016, '“Congenital heart health”: How psychological care can make a difference', Medical Journal of Australia, vol. 205, pp. 104 - 106.e1, http://dx.doi.org/10.5694/mja16.00392
2016
Dieng M; Cust AE; Kasparian NA; Mann GJ; Morton RL, 2016, 'Economic evaluations of psychosocial interventions in cancer: a systematic review', Psycho-Oncology, vol. 25, pp. 1380 - 1392, http://dx.doi.org/10.1002/pon.4075
2016
Kasparian NA; Nielson-Jones C; Glover V; Swinsburg D; Walker K; Badawi N; Austin M-P; Barnett B; Grant K-A; Kirk EP; Winlaw DS; Sholler GF, 2016, 'PSYCHOBIOLOGICAL OUTCOMES IN PARENTS AND THEIR INFANTS AFTER FETAL OR POSTNATAL DIAGNOSIS OF COMPLEX CONGENITAL HEART DISEASE', in INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE, SPRINGER, Vol. 23, pp. S93 - S93, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000388943400296&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2016
Ingles J; Spinks C; Yeates L; McGeechan K; Kasparian N; Semsarian C, 2016, 'Posttraumatic stressand prolonged grief after the sudden cardiac death of a young relative', JAMA Internal Medicine, vol. 176, pp. 402 - 405, http://dx.doi.org/10.1001/jamainternmed.2015.7808
2016
Rogers Z; Elliott F; Kasparian NA; Bishop DT; Barrett JH; Newton-Bishop J, 2016, 'Psychosocial, clinical and demographic features related to worry in patients with melanoma', Melanoma Research, vol. 26, pp. 497 - 504, http://dx.doi.org/10.1097/CMR.0000000000000266
2016
Kasparian NA; Mireskandari S; Butow PN; Dieng M; Cust AE; Meiser B; Barlow-Stewart K; Menzies S; Mann GJ, 2016, '“Melanoma: Questions and Answers.” Development and evaluation of a psycho-educational resource for people with a history of melanoma', Supportive Care in Cancer, vol. 24, pp. 4849 - 4859, http://dx.doi.org/10.1007/s00520-016-3339-3
2016
Custt AE; Dieng M; Butow P; Costa DSJ; Morton RL; Menzies S; Mireskandari S; Tesson S; Mann GJ; Kasparian N, 2016, 'Randomised controlled trial of a psycho-educational intervention to reduce fear of cancer recurrence in people at high risk of developing another primary melanoma.', in JOURNAL OF CLINICAL ONCOLOGY, AMER SOC CLINICAL ONCOLOGY, Chicago, IL, Vol. 34, presented at Annual Meeting of the American-Society-of-Clinical-Oncology (ASCO), Chicago, IL, 03 June 2016 - 07 June 2016, http://dx.doi.org/10.1200/JCO.2016.34.15_suppl.10068
2016
Dieng M; Cust AE; Kasparian NA; Butow P; Costa DSJ; Menzies SW; Mann GJ; Morton RL, 2016, 'Protocol for a within-trial economic evaluation of a psychoeducational intervention tailored to people at high risk of developing a second or subsequent melanoma', BMJ open, vol. 6, pp. e012153, http://dx.doi.org/10.1136/bmjopen-2016-012153
2016
Dieng M; Cust AE; Kasparian NA; Mann GJ; Morton RL, 2016, 'Economic evaluations of psychosocial interventions in cancer: A systematic review', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, Dublin, Ireland, Vol. 25, pp. 104 - 104, presented at 2016 World Congress of Psycho-oncology, Dublin, Ireland, 17 October 2016 - 21 October 2016, http://dx.doi.org/10.1002/pon.4272/full
2016
Kissane DW; Kasparian NA, 2016, 'Theoretical models guiding our understanding of sibling bereavement', in Sibling Loss Across the Lifespan: Research, Practice, and Personal Stories, pp. 1 - 13, http://dx.doi.org/10.4324/781315672861
2016
sansom-daly U; McGill B; kasparian N; Patterson P; Muscara F; Wakefield C, 2016, 'Navigating the impact of serious illness across the family system using evidence-based therapeutic approaches', in Menzies R; Kyrios M; Kazantzis N (ed.), Innovations and Future Directions in the Behavioural and Cognitive Therapies, Australian Academic Press, Queensland, pp. 176 - 181, https://www.australianacademicpress.com.au/books/details/287/Innovations_and_Future_Directions_in_the_Behavioural_and_Cognitive_Therapies
2016
Kasparian NA; Dieng M; Butow PN; Costa DSJ; Morton RL; Menzies S; Mireskandari S; Tesson S; Mann GJ; Cust AE, 2016, 'PSYCHO-EDUCATIONAL INTERVENTION CAN REDUCE FEAR OF CANCER RECURRENCE IN PEOPLE AT HIGH-RISK OF DEVELOPING ANOTHER PRIMARY MELANOMA: RESULTS OF A RANDOMISED CONTROLLED TRIAL', in INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE, SPRINGER, Vol. 23, pp. S221 - S221, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000388943400694&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2016
McDonald HM; Sherman KA; Kilby CJ; Kasparian NA, 2016, 'UNDERSTANDING DISTRESS THROUGH THE LENS OF POSITIVE PSYCHOLOGY', in INTERNATIONAL JOURNAL OF BEHAVIORAL MEDICINE, SPRINGER, Vol. 23, pp. S107 - S107, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000388943400341&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2016
Kasparian N; Meiser B; Butow P; McLoone J; Barlow-Stewart K; Mann G; Menzies S, 2015, 'What 'Survivorship' Means to Melanoma Survivors at High or Moderate Risk of Developing New Primary Disease', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, Vol. 24, pp. 316 - 317, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000577&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2015
te West N; Costa D; Kasparian N; Parkins K; Hayes W; Moore K, 2015, 'Does the incontinence treatment motivation questionnaire predict response to pelvic floor physiotherapy for stress urinary incontinence?', in BJOG-AN INTERNATIONAL JOURNAL OF OBSTETRICS AND GYNAECOLOGY, WILEY-BLACKWELL, Vol. 122, pp. 342 - 342, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000356713000750&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2015
Dieng M; Cust AE; Kasparian NA; Mann GJ; Morton RL, 2015, 'ECONOMIC EVALUATION OF PSYCHOSOCIAL INTERVENTIONS IN CANCER: A SYSTEMATIC REVIEW', in Asia-Pacific Journal of Clinical Oncology, WILEY-BLACKWELL, Vol. 11, pp. 95 - 95, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000364320800101&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2015
Dieng M; Kasparian NA; Morton RL; Mann GJ; Butow P; Menzies S; Costa DSJ; Cust AE, 2015, 'The Melanoma care study: Protocol of a randomised controlled trial of a psychoeducational intervention for melanoma survivors at high risk of developing new primary disease', BMC Psychology, vol. 3, http://dx.doi.org/10.1186/S40359-015-0074-3
2015
Liang R; Meiser B; Smith S; Kasparian N; Lewis C; Chin M; Long G; Ward R; Menzies A; Gumniski A; Harris J; Kaur R, 2015, 'Oncology patients’ attitudes toward, and experiences with, somatic mutation tumour testing', in Asia-Pacific Journal of Clinical Oncology, WILEY-BLACKWELL, Tasmania, Australia, Vol. 11, pp. 144 - 144, presented at Clinical Oncology Society of Australia 42nd Annual Meeting, Tasmania, Australia, 17 December 2015 - 19 November 2015, http://dx.doi.org/10.1111/ajco.12432_2
2015
Kasparian NA; Rutstein A; Sansom-Daly UM; Mireskandari S; Tyler J; Duffy J; Tucker KM, 2015, 'Through the looking glass: An exploratory study of the lived experiences and unmet needs of families affected by Von Hippel-Lindau disease', European Journal of Human Genetics, vol. 23, pp. 34 - 40, http://dx.doi.org/10.1038/ejhg.2014.44
2015
Dieng M; Mireskandari S; Costa DS; Morton RL; Mann GJ; Butow P; Menzies SW; Cust AE; Kasparian NA, 2015, 'THE MELANOMA CARE STUDY A PSYCHO-EDUCATIONAL INTERVENTION FOR PEOPLE WITH MELANOMA AT HIGH RISK OF DEVELOPING A NEW PRIMARY: A PILOT RANDOMISED CONTROLLED TRIAL', in Asia-Pacific Journal of Clinical Oncology, WILEY-BLACKWELL, Vol. 11, pp. 78 - 78, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000364320800048&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2015
Blue GM; Kasparian NA; Sholler GF; Kirk EP; Winlaw DS, 2015, 'Genetic counselling in parents of children with congenital heart disease significantly improves knowledge about causation and enhances psychosocial functioning', International Journal of Cardiology, vol. 178, pp. 124 - 130, http://dx.doi.org/10.1016/j.ijcard.2014.10.119
2015
Ayling L; Henry A; Sana M; Tracy S; Kasparian N; Donkin C; Welsh AW, 2015, 'Assessing capacity for informed consent during labour: design and implementation of a research tool', in BJOG-AN INTERNATIONAL JOURNAL OF OBSTETRICS AND GYNAECOLOGY, WILEY-BLACKWELL, Vol. 122, pp. 323 - 323, presented at BJOG, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000356713000711&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a
2015
Dieng M; Watts CG; Cust AE; Kasparian NA; Morton RL; Mann GJ, 2014, 'Improving subjective perception of personal cancer risk: Systematic review and meta-analysis of educational interventions for people with cancer or at high risk of cancer', Psycho-Oncology, vol. 23, pp. 613 - 625, http://dx.doi.org/10.1002/pon.3476
2014
Kasparian NA; McLoone JK; Meiser B; Karatas J; Chau J; Zilliacus E, 2014, 'Perceptions of melanoma risk among Australian adolescents: Barriers to sun protection and recommendations for improvement', Australian & New Zealand Journal of Public Health, vol. 38, pp. 321 - 325, http://dx.doi.org/10.1111/1753-6405.12209
2014
McLoone J; Menzies S; Meiser B; Mann GJ; Kasparian NA, 2013, 'Psycho-educational interventions for melanoma survivors: A systematic review', Psycho - Oncology, vol. 22, pp. 1444 - 1456, http://dx.doi.org/10.1002/pon.3165
2013
Kasparian NA; Fidock B; Sholler GF; Camphausen C; Murphy DN; Cooper SG; Kaul R; Jones O; Winlaw DS; Kirk EPE, 2013, 'Parents’ perceptions of genetics services for congenital heart disease: the role of demographic, clinical, and psychological factors in determining service attendance', Genetics in Medicine, vol. 16, pp. 460 - 468, http://dx.doi.org/10.1038/gim.2013.169
2013
Bui T; Wakefield CE; Kasparian NA; Tyler J; Abbott J; Tucker K, 2013, 'Oral contraceptive use in women at increased risk of breast/ovarian cancer: Knowledge and attitudes', Psycho-oncology, vol. 22, pp. 228 - 232, http://dx.doi.org/10.1002/pon.2049
2013
Kasparian N, 2013, 'Psychological stress and melanoma: Are we meeting our patients' pscyhological needs?', Clinics in Dermatology, vol. 31, pp. 41 - 46, http://dx.doi.org/10.1016/j.clindermatol.2011.11.005
2013
Kasparian NA; Shermann K, 2013, 'My Genes are my Destiny”: Psychosocial Aspects of Genetic Risk Assessment for Illness Susceptibility', in Caltabiano ML; Ricciardelli L (ed.), Applied Topics in Health Psychology, edn. Ist, Wiley-Blackwell, Sydney, pp. 171 - 184
2013
McLoone J; Watts KJ; Menzies S; Barlow-Stewart K; Mann GJ; Kasparian NA, 2013, 'Melanoma survivors at high risk of developing new primary disease: a qualitative examination of the factors that contribute to patient satisfaction with clinical care', Psycho-oncology, vol. 22, pp. 1994 - 2000, http://dx.doi.org/10.1002/pon.3243
2013
Bui T; Wakefield CE; Kasparian NA; Tyler J; Abbott J; Tucker K, 2013, 'Knowledge and beliefs about the risks and benefits of oral contraceptives in women at increased risk of breast/ovarian cancer.', Psycho-oncology
2013
Dieng M; Watts CG; Kasparian NA; Morton RL; Mann GJ; Cust AE, 2013, 'Improving Subjective Perception of Personal Cancer Risk: Systematic Review and Meta-Analysis of Educational Interventions for People With Cancer or at High Risk of Cancer', PSYCHO-ONCOLOGY, vol. 22, pp. 60 - 60, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000325687200090&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2013
Ingles J; Sarina T; Kasparian N; Semsarian C, 2013, 'Psychological wellbeing and posttraumatic stress associated with implantable cardioverter defibrillator therapy in young adults with genetic heart disease', International Journal of Cardiology, vol. 168, pp. 3779 - 3784, http://dx.doi.org/10.1016/j.ijcard.2013.06.006
2013
Kasparian NA, 2013, 'Psychological Care for People with Melanoma: What, When, Why and How?', Seminars in Oncology Nursing, vol. 29, pp. 214 - 222, http://dx.doi.org/10.1016/j.soncn.2013.06.007
2013
Kasparian NA, 2013, 'Psychological aspects of familial melanoma', Familial Cancer, pp. S1 - 22
2013
Dieng M; Cust AE; Morton RL; Costa D; Mann GJ; Menzies SW; Butow P; Kasparian NA, 2013, 'A Randomised Controlled Trial of a Psycho-Educational Intervention for Melanoma Survivors at High Risk of Developing New Primary Disease', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, Vol. 22, pp. 75 - 76, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000325687200113&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2013
Gleeson MA; Meiser B; Barlow-Stewart K; Trainer A; Tucker K; Watts KJ; Friedlander M; Kasparian NA, 2013, 'Communication and information needs of women diagnosed with ovarian cancer regarding treatment-focused genetic testing', Oncology Nursing Forum, vol. 40, pp. 275 - 283, http://dx.doi.org/10.1188/13.ONF.40-03AP
2013
Kasparian NA; Butow PN, 2012, 'Psychological responses and coping strategies in patients with skin cancer', in Rigel DS; Cockerell CJ; Friedman R; Lim H (ed.), Cancer of the Skin, edn. 2nd, Elsevier, London, http://dx.doi.org/10.1016/B978-1-4377-1788-4.00062-9
2012
Branstrom R; Kasparian NA; Affleck P; Tibben A; Chang Y-M; Baron-Epel O; Bergman W; Chan M; Davies J; Ingvar C; Kanetsky PA; Leeuwen EV; Olsson H; Gruis NA; Brandberg Y; Newton-Bishop J, 2012, 'Perceptions of genetic research and testing among members of families with an increased risk of malignant melanoma', European Journal of Cancer, vol. 48, pp. 3052 - 3062, http://dx.doi.org/10.1016/j.ejca.2012.05.017
2012
Meiser B; Gleeson M; Kasparian NA; Barlow-Stewart K; Ryan M; Watts KJ; Menon D; Mitchell G; Tucker K, 2012, 'There is no decision to make: Experiences and attitudes toward treatment-focused genetic testing among women diagnosed with ovarian cancer', Gynecologic Oncology, vol. 124, pp. 153 - 157, http://dx.doi.org/10.1016/j.ygyno.2011.09.040
2012
McLoone J; Meiser B; Karatas J; Chau J; Zilliacus E; Kasparian NA, 2012, 'Perceptions of melanoma risk among Australia adolescents: Is this the greatest barrier to sun adherence and what can we do about it?', presented at 14th World Congress of Psycho-Oncology, Brisbane, Australia
2012
Dieng M; Watts C; Kasparian NA; Morton R; Mann G; Cust A, 2012, 'Improving cancer risk understanding: A systematic review of educational interventions for people with, or at high risk of, cancer', Asia-Pacific Journal of Clinical Oncology, vol. 8, pp. 343 - 343
2012
McLoone J; Watts KJ; Menzies S; Meiser B; Butow PN; Kasparian NA, 2012, 'When the risks are high: Psychological adjustment among melanoma survivors at high risk of developing new primary disease', Qualitative Health Research, vol. 22, pp. 1102 - 1113, http://dx.doi.org/10.1177/1049732312448542
2012
Sherman KA; Kasparian N; Tucker K, 2012, 'SUPPORTING MEN, SUPPORTING WOMEN: DEVELOPMENT OF A WEB-BASED INFORMATION AND SUPPORT RESOURCE FOR SUPPORT PARTNERS OF WOMEN UNDERGOING GENETIC TESTING FOR BREAST CANCER RISK', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, Vol. 8, pp. 250 - 251, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000310544400095&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2012
Dieng M; McLoone JK; Meiser B; Butow PN; Barlow-Stewart K; Mann GJ; Menzies S; Cust A; Kasparian NA, 2012, 'PSYCHOLOGICAL CARE FOR PEOPLE AT HIGH RISK OF MELANOMA: DEVELOPMENT AND PILOT TESTING OF A PSYCHO-EDUCATIONAL INTERVENTION', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, Vol. 8, pp. 276 - 276, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000310544400172&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2012
Kasparian NA; McLoone JK; Meiser B; Butow PN; Charles M; Barlow-Stewart K; Mann GJ; Menzies S, 2012, ''LIVING BENEATH THE SWORD OF DAMOCLES': PERCEPTIONS OF RISK AND FEARS OF CANCER RECURRENCE AMONGST AUSTRALIAN MELANOMA SURVIVORS AT HIGH OR MODERATE RISK OF DEVELOPING NEW PRIMARY DISEASE', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY-BLACKWELL, Vol. 8, pp. 236 - 236, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000310544400050&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2012
Kasparian NA; Sansom-Daly U; Mcdonald RP; Meiser B; Butow PN; Mann GJ, 2012, 'The nature and structure of psychological distress in people at high risk for melanoma: A factor analytic study', Psycho-oncology, vol. 21, pp. 845 - 856, http://dx.doi.org/10.1002/pon.1976
2012
Kasparian NA; Branstrom R; Chang Y-M; Affleck PJ; Aspinwall LG; Tibben A; Baron-Epel O; Battistuzzi L; Bruno WJ; Chan M; Cuellar FA; Debniak T; Pjanova D; Ertmanski S; Figl A; Gonzalez MA; Hayward NK; Hocevar M; Kanetsky PA; Leachmann SA; Bergman WW; Heisele O; Palmer JM; Peric B; Puig S; Schadendorf D; Gruis NA; Newton-Bishop JA; Brandberg Y, 2012, 'Skin examination behavior: The role of melanoma history, skin type, psychosocial factors, and region of residence in determining clinical and self-conducted skin examination', Archives of Dermatology, vol. 148, pp. 1142 - 1151, http://dx.doi.org/10.1001/archdermatol.2012.1817
2012
Kasparian NA, 2011, 'Psychological support in paediatric cardiac care: What, where, when and how?', presented at Cardiac Society of Australia and New Zealand Annual Scientific Meeting, Perth Australia, 11 August 2011 - 15 August 2011
2011
McLoone J; Kasparian NA; Meiser B; Butow PN; Barlow-Stewart K; Charles M; Mann G; Menzies S, 2011, 'Melanoma risk, clinical care and patients' fears of melanoma recurrence: what is the interplay between these factors?', presented at Clinical Oncological Society of Australia (COSA), 38th Annual Scientific Meeting, OZPOS/PoCoG Professional Day, Perth, Australia, 14 November 2011
2011
Philipson S; Wakefield CE; Kasparian NA, 2011, 'Women’s knowledge, beliefs and information needs in relation to the risks and benefits associated with use of the oral contraceptive pill.', Journal of Women's Health, vol. 20, pp. 635 - 642, http://dx.doi.org/10.1089/jwh.2010.2455
2011
Kasparian NA; Deans C; Bennett BK; Sholler GF; Winlaw DS; Kirk EP, 2011, 'Pregnancy disrupted: Thinking about the experiences of mothers and fathers after fetal diagnosis of congenital heart disease', presented at World Congress of Psychotherapy, Sydney, Australia, 24 August 2011 - 28 August 2011
2011
Sholler GF; Kasparian NA; Pye VJ; Cole AD; Winlaw DS, 2011, 'Fetal and post-natal diagnosis of major congenital heart disease: Implications for medical and psychological care in the current era', Journal of Paediatrics and Child Health, vol. 47, pp. 717 - 722, http://dx.doi.org/10.1111/j.1440-1754.2011.02039.x
2011
Winlaw DS; Badawi N; Jacobe S; Kasparian NA; Cooper SG; Murphy DN; Sherwood MC; Leclair K; Scarfe G; Sholler GF; Roberts PD, 2011, 'Hypoplastic Left Heart Syndrome in context', Journal of Paediatrics and Child Health (Vol. 48, Suppl. 2, 2012, 1–13), vol. 48, pp. e7 - e9, http://dx.doi.org/10.1111/j.1440-1754.2011.02084.x
2011
Sholler GF; Kasparian NA; Winlaw DS, 2011, 'Congenital heart disease', Australian Doctor, pp. 27 - 34
2011
McLoone J; Kasparian NA; Watts KJ; Meiser B; Butow PN; Barlow-Stewart K; Menzies S; Mann G, 2010, 'Psychosocial adjustment and support needs of melanoma survivors receiving care at a high risk clinic: A qualitative investigation.', presented at Sydney Cancer Conference, Sydney, Australia, 15 July 2010 - 16 July 2010
2010
Watts KJ; Kasparian NA; McLoone J; Meiser B; Butow PN; Barlow-Stewart K; Menzies S; Mann G, 2010, 'Attitudes toward hypothetical genetic testing, satisfaction with clinical care, and information needs among high risk melanoma survivors: A mixed methods study', in European Journal of Human Genetics, Nature Publishing Group, London, England, presented at European Meeting on Psychosocial Aspects of Human Genetics, Gothenburg, Sweden, 12 June 2010 - 15 June 2010
2010
McLoone J; Kasparian NA; Watts KJ; Meiser B; Butow PN; Barlow-Stewart K; Menzies S; Mann G, 2010, 'Psychological adjustment and support needs among melanoma survivors at high risk of developing multiple primary melanomas: A qualitative evaluation. Symposium entitled: Cancer control behaviours: Who does them, who doesn't, and why not?', presented at Australasian Society of Behavioural Health and Medicine 7th Annual Scientific Conference, Brisbane, Australia, 10 February 2010 - 12 February 2010
2010
Kasparian N; Barnett B; Sholler G; Winlaw D; Kirk E, 2010, 'When hearts and minds meet: A psychological perspective on fetal cardiac diagnosis', in INFANT MENTAL HEALTH JOURNAL, WILEY-BLACKWELL, Vol. 31, pp. 103 - 104, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000208611800291&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2010
Meiser B; Gleeson M; Kasparian NA; Barlow-Stewart K; Ryan M; Mitchell G; Friedlander M; Tucker K, 2010, 'Attitudes and information needs of women newly diagnosed with ovarian cancer regarding treatment-focused genetic testing', presented at Human Genetics Society of Australasia Annual Scientific Meeting, Melbourne, Australia, 16 November 2010 - 18 November 2010
2010
Kasparian N; Re J; Menahem S; Sholler G, 2010, 'Holding hearts and minds together: The experiences of infants and families affected by congenital heart disease', in INFANT MENTAL HEALTH JOURNAL, WILEY-BLACKWELL, Vol. 31, pp. 103 - 103, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000208611800290&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2010
Parmar RC; Koene B; Kasparian NA; Cole A; Ayer J; Walker K; Nicholson I; Chard R; Sholler G; Badawi N; Winlaw D, 2010, 'Early and late outcomes of surgery for low birth weight infants (<2.5kg) with congenital heart disease', Cardiology in the Young, pp. 254 - 254
2010
McLoone JK; Kasparian NA; Watts KJ; Meiser B; Butow PN; Barlow-Stewart K; Menzies S; Mann GJ, 2010, 'Psychological adjustment and support needs among melanoma survivors at high risk of developing multiple primary melanomas: A qualitative evaluation', presented at Australasian Society of Behavioural Health and Medicine 7th Annual Scientific Conference, Brisbane, Australia, 10 February 2010 - 12 February 2010
2010
Shermann K; Kasparian NA; Mireskandari S, 2010, 'Psychological adjustment among male partners in response to women's breast/ovarian cancer risk: a theoretical review of the literature', Psycho-oncology, vol. 19, pp. 1 - 11, http://dx.doi.org/10.1002/pon.1582
2010
Branstrom R; Chang Y; Kasparian NA; Affleck P; Tibben A; Aspinwall L; Baron-epel O; Battistuzzi L; Bruno W; Chan M; Cuellar F; Debniak T; Pjanova D; Ertmanski S; Figl A; Gonzalez M; Hayward N; Hocevar M; Kanetsky P; Leaf S; Van nieuwpoort F; Heisele O; Palmer J; Peric B; Puig S; Ruffin A; Schadendorf D; Gruis N; Brandberg Y; Newton-bishop J, 2010, 'Melanoma risk factors, perceived threat and intentional tanning: an international online survey', European Journal of Cancer Prevention, vol. 19, pp. 216 - 226, http://dx.doi.org/10.1097/CEJ.0b013e3283354847
2010
Branstrom R; Kasparian NA; Chang Y; Affleck P; Tibben A; Aspinwall L; Baron-epel O; Battistuzzi L; Bergman W; Bruno W; Chan M; Cuellar F; Debniak T; Pjanova D; Ertmanski S; Figl A; Gonzalez M; Hayward N; Hocevar M; Kanetsky P; Leachmann S; Heisele O; Palmer J; Peric B; Puig S; Schadendorf D; Gruis N; Newton-bishop J; Brandberg Y, 2010, 'Predictors of Sun Protection Behaviors and Severe Sunburn in an International Online Study', Cancer epidemiology biomarkers and prevention, vol. 19, pp. 2199 - 2210, http://dx.doi.org/10.1158/1055-9965.EPI-10-0196
2010
Kasparian NA; McLoone J; Meiser B; Butow PN; Simpson JM; Mann GJ, 2010, 'Skin cancer screening behaviours among individuals with a strong family history of malignant melanoma', British Journal of Cancer, vol. 103, pp. 1502 - 1509, http://dx.doi.org/10.1038/sj.bjc.6605942
2010
Kasparian NA, 2010, 'Supportive care in the treatment of melanoma: Where, when, how, why?', in Ronai Z (ed.), Pigment Cell & Melanoma Research, Blackwell Munksgaard, England, presented at 7th International Melanoma Research Congress and 4th Melanoma and Skin Cancer Centres Meeting, Sydney, 04 November 2010 - 07 November 2010
2010
Kasparian NA; McLoone J; Meiser B; Butow PN; Simpson JM; Mann G, 2010, 'Skin cancer screening behaviours among individuals with a strong family history of malignant malanoma. Symposium entitled: Cancer control behaviours: Who does them, who doesn't, and why not?', presented at Australasian Society of Behavioural Health and Medicine 7th Annual Scientific Conference, Brisbane, Australia, 10 February 2010 - 12 February 2010
2010
Kasparian NA, 2010, 'When hearts and minds meet: A psychological perspective on fetal cardiac diagnosis. Symposium entitled: Holding hearts and minds together: Experiences of infants and families affected by congenital heart disease', in When hearts and minds meet: A psychological perspective on fetal cardiac diagnosis. Symposium entitled: Holding hearts and minds together: Experiences of infants and families affected by congenital he, World Congress of the World Association for Infant Mental Health, Leipzig, Germany, pp. 104 - 104, presented at World Congress of the World Association for Infant Mental Health, Leipzig, Germany, 29 June 2010 - 03 July 2010
2010
McLoone J; Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann G, 2009, 'When the risks are high: Psychological adjustment and unmet needs in malanoma survivors at high risk of developing another melanoma.', presented at The University of New South Wales Research Showcase for Well Being, Sydney, Australia
2009
Kasparian NA; McLoone J; Meiser B, 2009, 'Skin cancer-related prevention and screening behaviors: A review of the literature.', Journal of Behavioral Medicine, vol. 32, pp. 406 - 428, http://dx.doi.org/10.1007/s10865-009-9219-2
2009
Branstrom R; Kasparian NA; Chang Y; Affleck P; Newton-bishop J; Gruis N; Brandberg Y, 2009, 'Predictors of sun protection behaviours in an international sample', presented at 7th World Congress on Melanoma, Vienna, Austria, 12 May 2009 - 16 May 2009
2009
Kasparian NA, 2009, 'When melanoma runs in the family: The psychological and behavioural implications of genetic testing for melanoma risk', in Voudouris N; Mrowinski V (ed.), Combined Abstracts of 2009 Australian Psychology Conferences, 44th Annual Conference of the Australian Psychological Society, Darwin, Australia, presented at 44th Annual Conference of the Australian Psychological Society, Darwin, Australia, 03 October 2009 - 04 October 2009
2009
Kasparian NA, 2009, 'Through the looking glass: A qualitative study exploring the psychosocial experiences and unmet needs of families affected by VHL', in Proceedings of the Twelfth Australasian Conference on Familial & Genetic Aspects of Cancer, Twelfth Australasian Conference on Familial & Genetic Aspects of Cancer, Gold Coast, Australia, presented at Twelfth Australasian Conference on Familial & Genetic Aspects of Cancer, Gold Coast, Australia, 11 August 2009 - 14 August 2009
2009
McLoone J; Kasparian NA; Butow PN, 2009, 'Psychological responses and coping strategies amongst melanoma patients: A systematic review of the literature.', Archives of Dermatology, vol. 145, pp. 1415 - 1427, http://dx.doi.org/10.1001/archdermatol.2009.308
2009
Branstrom R; Kasparian NA; Chang Y; Affleck P; Gruis N; Newton-bishop J; Brandberg Y, 2009, 'The importance of risk perception, cancer worry and skin cancer history in skin cancer screening', presented at International Melanoma Genetics Consortium Annual Scientific Meeting, Slovenia, 08 June 2009 - 12 June 2009
2009
Wakefield CE; Juan A; Kasparian NA, 2009, 'Men at increased risk of developing breast cancer: language preferences for naming a cancer-related mutation', Genetic Testing and Molecular Biomarkers, vol. 13, pp. 395 - 398, http://dx.doi.org/10.1089/gtmb.2008.0152
2009
Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2009, 'Genetic testing for melanoma risk: A prospective cohort study of uptake and outcomes among Australian families', Genetics in Medicine, vol. 11, pp. 265 - 278, http://dx.doi.org/10.1097/GIM.0b013e3181993175
2009
Rutstein AN; Kasparian NA; Meiser B; Koehler J; Tyler J; Tucker K, 2008, 'An exploratory study of the information and support needs of individuals affected by one of two rare cancer syndromes: MEN2A or VHL', in Psycho - Oncology, John Wiley & Sons Ltd, Chichester, W Sussex, England, pp. S192 - S193, presented at Psycho-Oncology 2008, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000257874200366&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a
2008
Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'A psychological perspective on genetic testing for melanoma risk in Australia', presented at Australasian Society of Behavioural Health and Medicine 5th Annual Scientific Conference, Sydney, Australia, 31 January 2008 - 02 February 2008
2008
Meiser B; Kasparian NA; Lobb EA, 2008, 'Are individuals who choose to attend familial cancer clinics different to those who choose not to? Insights from cohort studies of high risk cancer families', in Proceedings of the Eleventh Australasian Conference on Familial & Genetic Aspects of Cancer 2008, Eleventh Australasian Conference on Familial & Genetic Aspects of Cancer, Couran Cove, Australia, presented at Eleventh Australasian Conference on Familial & Genetic Aspects of Cancer, Couran Cove, Australia, 21 August 2008
2008
Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'Genetic testing for melanoma risk: Psychological outcomes 12 months after notification', presented at International Melanoma Genetics Consortium Annual Scientific Meeting, Paris, France, 09 June 2008 - 12 June 2008
2008
Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'To test or not to test: Uptake of genetic testing for melanoma risk in Australia and associated psychological and behavioural implications', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, presented at Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting 2008, Sydney, Australia, 18 November 2008 - 20 November 2008
2008
Kasparian NA; Butow PN; Meiser B; Mann GJ, 2008, 'High- and average-risk individuals’ beliefs about, and perceptions of, malignant melanoma: An Australian perspective', Psycho - Oncology, vol. 17, pp. 270 - 279, http://dx.doi.org/10.1002/pon.1230
2008
Kasparian NA; Rutstein A; Meiser B; Koehler J; Tyler J; Tucker K, 2008, 'An exploratory study of the unmet information and support needs amongst individuals affected by one of two rare cancer syndromes: MEN2a and VHL.', Psycho-Oncology
2008
Mcloone J; Kasparian NA; Watts K; Meiser B; Butow P; Barlow-Stewart K; Menzies S; Mann G, 2008, 'Information needs and satisfaction with clinical care among melanoma survivors at high risk of developing new primary melanomas: A qualitative evaluation.', Asia-Pacific Journal of Clinical Oncology, pp. 251 - 251
2008
Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'Predictors of psychological distress among individuals with a strong family history of malignant melanoma', Clinical Geriatrics, vol. 73, pp. 121 - 131, http://dx.doi.org/10.1111/j.1399-0004.2007.00949.x
2008
Kasparian NA, 2008, 'Genetic testing for melanoma risk: A prospective cohort study of uptake and outcomes amongst Australian families', presented at Meeting of the Leeds Institute of Molecular Medicine, University of Leeds, United Kingdom, 22 October 2008
2008
Juan A; Wakefield CE; Kasparian NA; Kirk J; Tyler J; Tucker K, 2008, 'Men at increased risk of developing breast cancer: A decision aid for men considering genetic testing', in Asia-Pacific Journal of Clinical Oncology, Blackwell Publishing Asia, Australia, pp. 145 - 179, presented at 35th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Sydney, Australia
2008
Juan A; Wakefield CE; Kasparian NA; Kirk J; Tyler J; Tucker K, 2008, 'Development and pilot testing of a decision aid for men considering genetic testing for breast and /or ovarian cancer-related mutations (BRCA 1/2)', Genetic Testing, vol. 12, pp. 523 - 532, http://dx.doi.org/10.1089/gte.2008.0035
2008
Meiser B; Kasparian NA; Mitchell PB; strong K; Simpson JM; Tabassum L; Mireskandari S; Schofield PR, 2008, 'Attitudes to genetic testing in families with multiple cases of bipolar disorder', Genetic Testing, vol. 12, pp. 233 - 243, http://dx.doi.org/10.1089/gte.2007.0100
2008
Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2008, 'Genetic counselling and testing for melanoma risk: A prospective study of uptake and psychological implications in Australia', presented at European Meeting on Psychosocial Aspects of Genetics (EMPAG), Barcelona, Spain, 31 May 2008 - 03 June 2008
2008
Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GK, 2008, 'Genetic risk assessment amongst Australians with a strong family history of melanoma: uptake and psychological implications', in Psycho - Oncology, John Wiley & Sons Ltd, Chichester, W Sussex, England, pp. S277 - S278, presented at Psycho-Oncology 2008, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000257874200536&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a
2008
Kasparian NA; Rutstein AN; Meiser B; Koehler J; Tyler J; Andrews L; Tucker K, 2008, 'Unmet information and support needs amongst individuals affected by VHL or MEN2A', presented at VHL Medical Symposium, Roskilde, Denmark, 04 September 2008 - 06 September 2008
2008
Kasparian NA; Rutstein A; Meiser B; Tyler J; Koehler J; Tucker K, 2007, 'Development and trial of an international web-based survey to assess psychological adjustment among patients with one of two rare cancer syndromes: MEN2A and VHL', Asia-Pacific Journal of Clinical Oncology
2007
Kasparian NA, 2007, 'Genetic testing for melanoma risk: What are the emotional and behavioural implications?', presented at The University of Sydney Cancer Research Network on Cancer Screening: Communication, genetic testing and counselling, Sydney, Australia, 01 November 2007
2007
Kasparian NA; Meiser B; Simpson JM; Mann GJ, 2007, 'Psychological responses to genetic information: What's the story for individuals with a strong family history of melanoma?', Asia-Pacific Journal of Clinical Oncology, vol. 3, pp. A75 - A109, http://dx.doi.org/10.1111/j.1743-7563.2007.00128.x
2007
Kasparian NA; Meiser B; Butow PN; Job RFS; Mann GJ, 2007, 'Anticipated uptake of genetic testing for familial melanoma in an Australian sample: An exploratory study', Psycho-oncology, vol. 16, pp. 69 - 78, http://dx.doi.org/10.1002/pon.1052
2007
Meiser B; Mitchell PB; Kasparian NA; Strong K; Simpson JM; Mireskandari S; Tabassum L; Schofield PR, 2007, 'Attitudes toward childbearing, causal attributions for bipolar disorder and psychological distress A study of families with multiple cases of bipolar disorder', Psychological Medicine, vol. 37, pp. 1601 - 1611, http://dx.doi.org/10.1017/S0033291707000852
2007
Kasparian NA; Wakefield CE; Meiser B, 2007, 'Assessment of psychosocial outcomes in genetic counseling research: An overview of available measurement scales', Journal of Genetic Counseling, vol. 16, pp. 693 - 712, http://dx.doi.org/10.1007/s10897-007-9111-6
2007
Wakefield CE; Kasparian NA; Meiser B; Homewood J; Kirk J; Tucker K, 2007, 'Attitudes toward genetic testing for cancer risk after genetic counseling and decision support: A qualitative comparison between hereditary cancer types', Genetic Testing, vol. 11, pp. 401 - 411, http://dx.doi.org/10.1089/gte.2007.0013
2007
Kasparian NA; Meiser B; Butow PN; Simpson JM; Mann GJ, 2007, 'Evidence for three distinct models of psychological distress amongst individuals with a strong family history of melanoma', presented at International Melanoma Genetics Consortium Annual Scientific Meeting, Lund, Sweden, 11 June 2007 - 14 June 2007
2007
Mann GJ; Kasparian NA; Butow PN; Simpson JM, 2006, 'Psychosocial aspects of genetic testing for melanoma risk: A study update', presented at International Melanoma Genetics Consortium Annual Scientific Meeting, Genoa, Italy, 06 June 2006 - 09 June 2006
2006
Kasparian NA, 2006, 'An update on progress of the Australian GenoMEL psychological research projects', presented at Collaborators Meeting at the Department of Oncology-Pathology, Karolinska Institute, Sweden, 01 November 2006
2006
Kasparian NA; Meiser B; Butow PN; Job RF; Mann GJ, 2006, 'Better the devil you know? High-risk individuals’ anticipated psychological responses to genetic testing for melanoma susceptibility', Journal of Genetic Counseling, vol. 15, pp. 433 - 447, http://dx.doi.org/10.1007/s10897-006-9038-3
2006
Kasparian NA; Meiser B; Butow PN; Simp-Son J; Mann G, 2006, 'Psychological distress among individuals at highrisk of developing melanoma due to strong family history: Preliminary findings', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, Vol. 15, pp. S285 - S285, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000242413901114&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2006
Hatfield J; Kasparian NA; Murphy S; Job RS, 2005, Risk perceptions, attitudes and behaviours regarding driver fatigue in NSW Youth: The development of an evidence-based driver fatigue educational intervention strategy, Motor Accidents Authority of NSW, Report to the Motor Accidents Authority of NSW
2005
Kasparian NA; Meiser B; Butow PN; Simpson J; Mann GJ, 2005, 'Precaution adoption, perceived risk, and psychological distress among those at high-risk of developing melanoma: Preliminary findings.', Hereditary Cancer in Clinical Practice
2005
Hatfield J; Murphy S; Kasparian NA; Job RFS, 2005, Risk perceptions, attitudes and behaviours regarding driver fatigue in NSW youth: The development of an evidence-based driver fatigue educational intervention strategy, Motor Accidents Authority of NSW, Report to the Motor Accidents Authority of NSW, http://www.irmrc.unsw.edu.au/documents/interventionstrategy%20report.pdf
2005
Kasparian NA; Meiser B; Butow PN; Hughes TMD; Job RFS; Mann GJ, 2004, 'Genetic testing for melanoma susceptibility: Psychosocial issues for families at high risk', presented at European Meeting on Psychosocial Aspects of Genetics (EMPAG), Munich, Germany, 12 June 2004 - 15 June 2004
2004
Kasparian NA; Meiser B; Hughes TMD; Job RFS; Mann GJ, 2003, 'The psychological consequences of genetic testing for melanoma susceptibility', presented at 6th World Congress Psycho-Oncology, Banff Alberta Canada, 23 April 2003 - 27 April 2003
2003
Kasparian NA; Meiser B; Hughes TMD; Job RFS; Mann GJ, 2003, '“Better the devil you know?” Understanding individuals’ attitudes toward, and interest in, genetic testing for melanoma susceptibility', presented at 6th Australasian Conference on Familial & Genetic Aspects of Cancer, Couran Cove, Australia, 03 September 2003 - 06 September 2003
2003
Kasparian NA; Meiser B; Hughes TMD; Job RFS; Mann GJ, 2003, 'An empirical study of the psychological consequences of genetic testing for melanoma susceptibility', PSYCHO-ONCOLOGY, vol. 12, pp. S196 - S196, http://gateway.webofknowledge.com/gateway/Gateway.cgi?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000183225400360&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
2003
Kasparian NA; Meiser B; Job RFS; Mann GJ, 2002, 'The psychological consequences of genetic testing for melanoma susceptibility', in Australian Journal of Health Psychology, Postgraduate Conference, Sydney Australia, pp. 157, presented at Postgraduate Conference, Sydney Australia, 15 November 2002
2002